November is National Epilepsy Awareness Month! Many of us were surprised this year when we heard of the celebrity Cameron Boyce, Disney Channel star passed away. His cause of death was due to epilepsy, but specifically SUDEP. Hearing that a person can pass away with Epilepsy is a surprise to many and many people were saddened by his death. Cameron’s parents have since created a charity. Their charity is called the Cameron Boyce Foundation which joined forces with the Epilepsy Foundation to create K(NO)W SUDEP NOW- an initiative to bring awareness and to end sudden unexpected death in epilepsy.
My Story and Links
- https://heartshare.blog/2019/05/02/describing-life-with-epilepsy/
- https://heartshare.blog/2019/07/08/love-and-learn/
- https://heartshare.blog/2019/04/25/my-epilepsy-journey/
It is interesting to me, after seeing the color purple representing Epilepsy especially on Purple Day, March 26th annually. Epilepsy’s color is actually Lavender, which is a color representing peace and comfort. This is very appropriate as those of us who have epilepsy really need peace and comfort. We need comfort when having seizures and we need peace and calmness on a regular basis, not stress, as stress often induces seizures for many of us.
Other well known people who have (or had) epilepsy:
- Alexander The Great
- Theodore Roosevelt
- Edgar Allen Poe
- Julius Caesar
- Vincent Van Gogh
- Socrates
- Michelangelo
- Charles Dickens
- Agatha Christie
- George Gershwin
- Susan Boyle
- Elton John
- Prince
If you are in the fight against epilepsy and want to be a part of a faith-based epilepsy support group that I run, feel free to visit my Facebook group at the following link or search for the group called Epilepsy Hope.
Interesting list of individuals! My boyfriend has epilepsy and it has gradually improved since his amygdalohippocampectomy and with medication and lifestyle changes. I wouldn’t wish the fear, pain, and limitations on anyone. I hope that you’re doing well and continuing to remain seizure-free. <3
I’m so glad to hear that your boyfriend is better and not having seizures! I’m doing well still also, thank God! I’m almost 2.5 yrs seizure free
This was good stuff. I especially loved the wet leaf with the rain drops…of course. http://seizuremamaandrose.org
Thank you for this very informative post. God bless you.
I have grand mal epilepsy. I love this post.
I’m really sorry about your epilepsy! I know how hard it is! I’m so glad you like my post!
I’m fortunate to have it under control with medication and taking care of myself. I know that there are so many others who aren’t at that point. It makes me sad.
I’m glad it is under control! I’m doing well now too! I just passed the 1 year mark a few weeks ago. There are so many that hope and try new meds that don’t worktmedicines
Sorry, had trouble with the app down at the end. Take care
Congratulations on going a year! I hope it’s the first of many without seizures.